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Old 11-09-2008, 08:43 PM
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
15 yr Member
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Hi RW, thanks for the fantastic information. How often do they do these sorts of things and how do you get invited? Like you, I have never once heard from anyone connected to the drug (case manager etc.) except for the very first time. One thing I did like about Shared Solutions is that they were always checking in with you. Somehow it felt more reassuring and made it easier to stick with the drug. Biogen should definitely move in this direction -- you would think after the PML case(s) they would have sent something out. Of if that was too problematic (for legal reasons?) they should still have a system in place where people call periodically and check in with you. I'm surprised from a financial standpoint they don't do that (providing unsolicited support to keep people on Tysabri).
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