Quote:
Originally Posted by Natalie8
Hi RW, thanks for the fantastic information. How often do they do these sorts of things and how do you get invited? Like you, I have never once heard from anyone connected to the drug (case manager etc.) except for the very first time. One thing I did like about Shared Solutions is that they were always checking in with you. Somehow it felt more reassuring and made it easier to stick with the drug. Biogen should definitely move in this direction -- you would think after the PML case(s) they would have sent something out. Of if that was too problematic (for legal reasons?) they should still have a system in place where people call periodically and check in with you. I'm surprised from a financial standpoint they don't do that (providing unsolicited support to keep people on Tysabri).
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That was the point I made, Natalie. They should be asking people once in awhile about how they are doing, and whether they have any unanswered questions. It would be in their best interest as a company selling a major MS treatment, and they should start acting like that is what they are doing.
Yabbit was the one who got the information. Go to MSActiveSource.com and click on educational events and choose your state. If there is something scheduled, you will find it there.
For a good laugh go to
http://www.msactivesource.com/msavPr...rces-links.xml and look at the bottom of the page. It's STILL there!
They must have worked on the site this weekend because Tysabri IS mentioned now under educational events. There are a few teleconferences listed about Tysabri.