I'm so stinkin' frustrated!!!! Hoping someone here might have some further insight into what might be going on.

Been having what I call 'wake-n-shakes' since April. I'll wake up in the middle of the night and (usually) my right hand will be having huge tremors. Sometimes I'll wake up from a nap and then the tremors will start. Occasionally, the tremors will start with my jaw and then the hand thing will start. I've even had one full-body episode of this (started with the jaw and then moved to all 4 limbs).

I'm perfectly aware of what's happening when it's happening. The cycle is wake up, hand (or whatever body part) goes wubba-wubba-wubba, then I fall back to sleep again right away. Sometimes it only hits once a night, other times this will hit 3-4+ times a night.

This is the sole reason I got a sleep study in the first place back in September. Took a whole 6 weeks to get the results back and I finally heard back from the neuro.

Everything came back fine on the polysomnogram! No mention of the multiple wake-n-shakes that happened during the study!!!!

Asked the neuro about the wake-n-shakes. He said they were probably sleep paroxysms and sometimes very difficult to detect. No further info, even when prodded. Thanks doc. *grumblemutter*

Any idea just what a sleep paroyxism is? Can't find anything on line regarding that particular term.

The MSLT came back with a dx of 'moderate excessive daytime somnulance (EDS - not the flexy one)'. Fell asleep during all 4 nap periods in under 7 minutes and reached stage 2 sleep in all but one of them. From what I understand, that's not normal. The neuro rx'd Provigil to help with the EDS.

The good news is no sign of apnea or narcolepsy.

One thing I've recently noticed is that when I'm even the least little sleep deprived, the wake-n-shakes happen. I've been keeping (loose) track of my sleep habits and that's the only "pattern" I've seen so far.

Would definitely explain why it happened during the sleep study - made sure I was good and sleep deprived for that.

So anyway, according to the neuro, I'm supposed to take the Provigil, see if that helps eliminate the wake-n-shakes, and if it doesn't he'll refer me to a sleep specialist. Picking up the Provigil this week.

I'm now especially eager to see whether the Provigil would make the wake-n-shakes better or worse, considering it's supposed to keep me up during the day. Less sleep = more episodes?

Anyway, I'd really appreciate any input you might have on this. I'm seeing a shiny new neuro in January. Until then, I'm hanging out here in limbo.

Thanks in advance!