I've read different views on VNS usage for people with sleep apnea.My daughter is 17 and nothing has helped her seizures-meds, diet and three stage craniotomy. She is disabled,nonverbal and low tone thru her abdominal/trunk area. She is given diastat every 5 days or so when her seizures are really bad- all types but grand mal- turning to generalized seizures.

She doesn't tolerate a C-PAP for the sleep apnea. We are going to have another sleep study done soon and then the VNS--her neuro doesn't seem concerned about her sleep apnea but I AM.

I am also worried about any side effects because she can't tell me how she feels and yet---if the VNS could help her, I hate to have my fears stand in the way of something that might help.

So the question is -anyone with a VNS who has sleep apnea- and how has it helped your seizure activity and your apnea?
thanks cait