Hi Lisa,
I'm sorry you have RSD. It's amazing how long we can have it yet learn more and more. I wanted you to know I live in Scottsdale, should you ever want to talk or post directly to me. I developed RSD the day following surgery back in 1996. It started with swollen arm and then frozen shoulder. It wasn't diagnosed as such, just complications from left breast surgery. I had PT and massage therapy. The rehab Dr. I was referred to and that oversaw my pt wanted me to see Orthopedic Surgeon. He was to operate to 'speed' up the process. Would still have to have PT. I said no thank you. I had already been thru about 1/2 (50) pt. I did the massage therapy on my own just before pt.
It was torture.So I finished out the therapy and had nearly all range of motion back.