Sue, thanks so much! I've been so lost and my docs haven't been much help in figuring this out (or sharing info). By posting here, I was hoping to find a breadcrumb, rather than a diagnosis. At least I'd maybe find something that pointed in the right direction.

Never even occurred to me to find an Epilepsy center. I mean, I've had suspicions that's what it is, but was hoping for a dx from the neuro. I find the idea of actually being diagnosed with the "E-word" somewhat scary.

Oh yeah, new development on the wake-n-shake front: been having nights where I don't know if I'm having repeated episodes all night or if I'm dreaming about having repeated episodes all night. Been having odd imagery and a feeling of foreboding prior to the episodes and that makes me even more confused about what it really is.

Thanks again! Will do some investigating and post as things develop.