Quote:
Originally Posted by jnet1589
Hi My name is Jnet this is my first time posting on this site. I just started LDN 11/1/08. I'm taking 1.75 one night and 3.5 the next. We want to slowly bring my immune system up. then pretty soon 3.5 for a month. then we will try 4.5. When I do the 3.5 I feel more enerergy. I feel a little bit better balance but not a lot yet. I am excited. I quit Tysabri in September.  |
Oops ... I originally came here to welcome you, jnet, then forgot to.
to NT, and LDN too.
Interesting approach to adapting to LDN, by alternating the dosage like that. Where did that idea come from? I started on 3.0 mg (way back when), but it might have been easier to alternate like you have done.
I take it Tysabri didn't work for you, if you are thinking you feel a little better without it (perhaps also because of the 3.5mg LDN)? How long were you on T for? Did it keep disease progression stable for some time though . . . cause sometimes that's all we can accomplish with the various DMD's we try?
I hope you finally found your ticket to stabilization.
Unless you continue to have lots of problems, I'd give LDN 9 months to a year . . . as that is how long it took many of us to have some sense of confidence that it was working for us for relapses and progression (although I had considerable symptom mgmt relief from the get-go). I was on a bad downhill slide at that point, after 14 yrs with MS, and have not deteriorated neurologically since I went on LDN . . . at least according to my neuro.
Cherie
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