Hi Karen,
Thank you for posting for me on this subject. My question to you is - have you had any surgeries with RSD present in your body???
I know about Scott Reuben all too well - I have probably read everything I have found on his research. I would love to be closer to Boston to be in their clinic - although, it still isn't completely out of my mind. The hospital I am dealing w/is very well educated and all these precautions will take place - it is still a very hard decision to make because if it doesn't work there is no turning back. I have heard from people that it doesn't work for everyone. But, as my sister-in-law said - I will never know untill I try it. Easy for anyone who isn't living it and knowing how bad it can get to say that.
I hope that you are one of the many tried and true cases - that gives hope!!!
Hugs back at ya,
Robin
Quote:
Originally Posted by GalenaFaolan
Do a search for rsd and surgery. From the medical literature I've read, having surgery doesn't have to equal spread and more pain. Someone else on another board mentioned surgery to fix a foot problem that is complicating her case. This is what I told her based on what I've researched.
As for being unable to have surgery, the good news is with the proper precautions before and after one can have surgery successfully with no spread or flare in pain. I've "seen" quite a few people around the web that really needed surgery for one thing or another and were fine. Have an epidural catheter with local anesthetic with or without pain meds at least 12 hrs before the surgery, then have the epidural in for 3-6 days after surgery to prevent a flare and hopefully any spread. When you keep the sympathetic nervous system "normal" it won't spread because the nerves don't flare up. All of this of course means a hospital stay of 3-7 days even for something that might be an outpatient procedure but it sure beats the heck out of what might happen without all the precautions!
You can have your doc do some of his own research as well. He'll like read some of the same medical articles I have. LOL Go to and scroll down to the CRPS and Surgery part. There's a few articles there that are good. It's where I got my answer from and just condensed a part of it.
Hugs,
Karen
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