Hi all
I have been doing the peripheral neuropathy bit for 18 months of more.
EVERY test that I've had (many, many on LizJane) have been negative
including the last bunch ordered by a peripheral neuropathy specialist.
I also had the skin biopsy a couple of weeks ago and eagerly (can you believe I want a positive SOMETHING) awaiting it's results. To name but
a few and probably forgot many, the usual CBC, lytes, B12 (then the specialized B12...methy...something), sjogrens, celiac disease, GTT.
homocystine, all thyroids, heavy metal, ncv, emg, anti hu, immunglobulins
A, M and G. Apparently mine is small fiber as dont currently have any motor/autonomic involvment. I am 64, female, and have the burning in feet, legs, hands and arms. Is it possible to have idiopathic and still have a negative skin biopsy? I am so hoping for this to be positive. Nobody seems to understand, I look fine and all tests negative. I am starting to wonder if I am nuts (or for sure other people must think it is psychological and yet I
really dont think I am) Also had brain MRI (normal) Mri cervical spine which shows some bulging discs, stenosis, etc. but not enough for surgery or for the symptoms I have having below the waist. Any other thoughts? ps
have tried by omission many meds, supplements, laundry detergents, and add many of the suggested supplements without any changes. Sorry for the rambling I did so hope something would show even if it wasnt good. THEN I could maybe deal with the problem better. Yeah, part of the bigger picture is I feel no one seems to understand. Again, I know I am repeating myself but when you have a broken leg people see, when you have some other horrible things labs show...Guess I shouldnt give up hope for a positive skin
biopsy yet. Dont see how it could be negative with all the burning BUT...I
know it may not change the treatment or lack there of but at least there would be some credence.