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Old 11-12-2008, 02:35 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default comparing patterns

For myself, a typical 24 hour period goes as follows-
10 PM to Midnight- Shuffle off to bed thoroughly "off" and exhausted. Fall asleep quickly.

1 AM to 2 AM- Awaken to go to bathroom. Am in better shape than when I first went to bed. On a scale of ten, went to bed a 3 and now a 6. If I stay up fifteen minutes I am down to a 3 again.

4 AM to 5 AM- Often awaken to go, either again or instead of earlier trip. Something changes in this period. If it is at 4 AM then I am about a 3 but if at 5 AM I am a 6 or 7.

7 AM to 8 AM: Get up about a 6. Usually have dystonia of left foot for 15 minutes. Take meds and wait. After half-hour have dropped to a 4. About the one hour mark I have sudden need to stretch various parts of body for next 15 minutes. Usually on by one hour mark but can be as long as three hours.

Note- If I take meds at 5 AM and go back to bed it is as though I never took them. (BTW, meds are (1) sinemet CR 200/50 with 6 mg of requip)

10 AM- Second round of meds. Full on (10) by 10 to 11M.

2 PM- Third round. Note- this is a period that I am fragile and can go off big time. Then things stabilize by 3 PM.

6 PM- I cheat and take a fourth round.

9 PM- Start final decline.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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