Quote:
Originally Posted by islandgrl
Hi Lori Lee,
I also am new here and I wanted to say to you that I have had the sympathetic nerve blocks and am so grateful I did. They caught mine in the first 3 months and yours even sooner and from all I know that is the best for trying to hold it at bay.
Please go ahead w/the blocks - I too, was scared but am so glad I did. I credit the Drs. that did this for me for controlling it as well as it is today almost a year later. The only thing I experienced with the shots was with the first one, ( I had 3 ) I did not eat enough of a carbohydrate substance breakfast and had a drop in sugar and blood pressure. It resolved with no problems, just had to wait it out in recovery longer than most. And, the 2nd & 3rd no problem at all
I have since changed hospitals and the new facility cannot believe I have had no spreadage and for that I am grateful. I think being on here is great for all of us and we can all help each other out. May I ask what part of Pa. are in that is where I am also.
Take Care & MAKE THAT APPOINTMENT TODAY!!!
Robin 
QUOTE=llrn7470;404015]Hi all-I am new to the board and new to CRPS. I have just been diagnosed about three weeks ago after elective knee surgery and a nerve block for anesthesia (or lack there of, in my case). Anyway, my PMR doc is pushing for a sympathetic nerve block. Ironically, I am a neurosurgical ICU nurse by trade, so I am not afraid of the procedure itself. I am afraid of what it may or may not do for my condition. Any experiences or suggestions? Just got off steroids and am being trialed on Neurontin and Lyrica with Ultram-my mental state is shot due to all of these medications and all I can be is afraid. Hope someone feels like being the voice of reason for me.
Thanks for giving me a safe place to talk about this incredibly crappy condition with those who can relate.
Lori Lee  |
[/QUOTE]
Hi Robin,
Thanks for responding to my post. I don't know why I was so nervous, but now that I have had it done (yesterday), I'm really glad that I did. Even though it only lasted for 12 hours, those were the best! I actually felt good enough to do some desensitization, go out to dinner with my family, and do some increased weightbearing on my left leg. The strangest thing was that the whole thing seems like a magic trick. Not sure if they do these with everyone, but they put little stickies to take temperatures on each foot and 10 minutes after my injection you could see the temperature go up on my foot and my previously purple leg turn pink. It almost seemed like I was touching my leg for the first time because it gradually didn't have the horrible burning and tingling sensation. I'm scheduled for at least two more.
I find this board wonderful too. When you have a question about this weird, rare, disruptive disease, you have somewhere to turn and ask questions, get answers, and know that you are understood. Sometimes I look back at the old posts just to learn something new.
I'm in southwest PA, about an hour and fifteen minutes out of Pittsburgh. I actually work at UPMC and commute each day. It would be nice to have a friend on the board. I see you have northwest PA listed; are you really far up there or more in the middle? I went to college with some friends that lived in eastern PA. It's nice to meet you.
Lori Lee
