Quote:
Originally Posted by Loretta jewell
Hi cz,
My name is Loretta. I've had RSD for 12 years now-full body. I've been reading the post on Lyrica and breathing problems. I switched to Lyrica a few months ago and now have rattling in my lungs and coughing. Had been on Neurotin, have gained a lot of weight since these two drugs, but had lots of spasms, shocks, jerks, etc. one very bad seizure, unconsciouses for at least an hour. Anyway, my question is what do you mean by the lesion stage? Do you mean lesions on the brain, or skin lesions. I am having progressive skin lesions, rashes, etc. Thanks so much. I always read your posts and learn a lot. Take care, Loretta
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Loretta, I was referring to skin lesion, described as occurring in stage IV. Mine range in size form 3-4 Inches wide and long. On the day they appear- always open- the pain is excruciating. 9-10 i can barely stand it. If it is on my leg, like the last one , which ulcerated, I can be in my wheel chair for 2 weeks. The one on my knee took almost 6 weeks to dissipate. But thee scar, deep black or red during a flare is still there and it is still active under the skin.I sent pictures of all of my lesions to Dr. S he wrote back that they are caused by "cytokines being released from the nerve cell." Thus damaging the tissue, Neurological burns. He said he has consulted with all the big dermatologists and they have nothing to offer. You just have to Wait it out and get through them. My pain management doctor told me in my case he knew thy were coming. I was rather angry he didn't tell me. But they have there reasons- stress apparently aggravates them. the only thing we can do is keep stress low(lol)As far as treatment I was told to keep them clean and dry. I was given scripts for Elma cream, which I can apply very carefully by the third or fourth day and then wrap in Saran wrap for a few hours and the area goes numb.There are not enough pain meds for this type of pain, at least with mine.If I knew how to post pictures I would send them to you and you could see if they look like yours. Or if you send me your email I know how to attach pictures to the email and will send them to you. I am so so sorry to hear you are having these. They really set me back, I find them horrifying. I have strictly limited my activity even more as I am terrified of getting more, I have now had 6 very scary lesion. The one on my knee ulcerated and lasted 6 weeks and is still active- when ever I flare it flares turning black, blue then red hot on fire. Hope this helps, Please don't hesitate to write me or send you email address and I will send you the pictures. If you know how to post maybe you could post them for me.:: Thank you again so very much, Loretta(we are both full body)- Not that it really matter, pain 24/7 in one limb has all the same complications don't you think?God Bless.CZ