Hello neverseenblu and welcome to NeuroTalk.

I'm sorry to read about all that your son has gone through. It must be hard as a mom to watch your own child suffer with an illness like this.

We have a great Epilepsy Forum and I see that Alffe has already given you the direct link.

That forum has some wonderful members who check in there from time to time, so please drop into the forum and say hello.

If you post your questions there, I'm hoping that some-one will be able to help you out.

Welcome again. I hope you'll get some of the answers that you seek.