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Old 11-14-2008, 12:49 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by Bassetcase View Post
Oddly enough, applying heat to my ear helps more than anything else.
Hello Rhonda. Nice to hear from you!

Actually, this doesn't sound odd at all. When I get into a state of facial burning pain and the lightning bolts, I get in the bathtub (really hot water) and something about the heat reduces the intensity of the condition/pain. Odd huh? MS'ers are supposed to hate heat!

I see my neuro Monday thankfully, and I'm going to tell him simply "Ok so you found MS in March, please don't stop there, because I think there's more going on in my body than simply MS". TN as I say was already pointed out by my dentist. I have the burning mouth crud, but that in itself MAY be Lupus (which my mother has). I just fear they stopped at MS and decided "That's the cause of your pain, MS". And will just leave it at that. Ugh!

Hang in there folks, I feel for you.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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