Quote:
Originally Posted by islandgrl
Hi everyone,
I am new to this forum and I am looking for people to talk with about any surgery experience they have had since being diagnosed with RSD/CRPS. I am in a situation with a fractured sesamoid bone and was diagnosed with RSD/CRPS 4 months later. That was last year 7/2007 and my pain level is doing real well at this point. The surgery will be the only way for me to get my life back and to walking properly w/o a walking cast or these pads I need to put into my shoes to alleviate the pressure at the fracture site. But I am extremely terrified of the RSD/CRPS spreading and making my life worse than were I am at right now. The Drs. are willing but have suggested very strongly to not go through w/it. Any suggestions, help or experience would be greatly appreciated.
Thanks!!
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Hi Islandgirl,
I have had RSD for I can't believe it will be 5 years this January. I have had 3 major and 1 minor surgery since being Diagnosed. Each time I had a surgery ketamine was used as part of the anestheisa(spelling) to keep the RSD at bay which was dictated by my Pain Mgn. Dr. I was lucky because my surgeon and PM Doc work in the same hospital. I am one who has done the 5 day awake version of ketamine w/boosters. At this point in my experience my RSD is calm and some what under control in the original area unfortunately I have had an additional fall and hurt my back the s1 and s2 area and right now that is giving me more trouble then the RSD. I have heard of have epidurals before surgery to keep the RSD at bay but I don't have any experience with it. I would bring it up with your surgeon and anestiologist(spelling) and talk about it in detail. I have seen post on this site where doctors don't take any precaution which I believe is not the correct way to handle it. To some up I don't believe any of my additional surgeries effected my RSD. Everyone is different but some intervention should be done prior to surgery when having RSD. My surgeon felt that my PM Dr was making a big deal his quote was that "is was like killing a fly with a hammer". But I am grateful he insisted because I was really fine after the surgeries.
Good Luck,
Gabbycakes