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Old 11-15-2008, 02:08 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by coletaterbug View Post
I have a few questions if someone can answer them.

How many have noticed a change in symptoms since taking Ty?

How about people that don't have veins like me is it much harder or do you qualify for lack of veins? Trust me they always have problems.

How many have had bad reactions and had to quit?

Does it make you feel sick afterward?

I am going to ask these questions when I go on the 26th this month as I am going for Tysabri then but was just wondering.
Hi Coletaterbug!

Boy, it's hard to answer that set of questions. We don't keep track here with over 700 posts to this thread, but if you have time, read through the thread and you will find answers.

For me, I have had a major change in my symptoms. I don't have any more except for spasticity and stiffness and even those are greatly reduced. I haven't had a relapse since I started!

I don't have an answer for your veins. I was a paramedic for many years and did a LOT of blood draws and IVs and I could always find a vein when I needed to and I needed to find them every time as it was always in an emergency situation, whether it was a blood draw or starting an IV. If you have problem veins, you should ask for a phlebotomist every time. Make sure you are drinking LOTS of fluids before infusion to help plump up your veins, dehydration doesn't help with veins that like to hide!

There have been a number of people who posted here that they have had reactions. Some have cleared up, some have not and those people have not continued with Tysabri. I haven't had any reactions except for a slight pinpoint itch in 20 infusions.

Feeling sick- I had nausea once. I hadn't eaten, worked a 10 hour overnight shift, got three hours of sleep and had my infusion. My nurses remind me to eat and drink before infusion. They give me crackers and peanut butter if I haven't had time and sometimes I even get lunch!

Let us know how it goes for you! We'll be waiting!
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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