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Member
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Join Date: Oct 2006
Location: Greene, NY
Posts: 153
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Member
Join Date: Oct 2006
Location: Greene, NY
Posts: 153
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Questionnaire for RSD sufferer
1.
How long have you had RSD?
6 Years
2.
What was the initial cause?
I had a foot surgery for a Mortons Neuroma
3.
What treatments/medications have you tried? How effective have they been?
I have had many many SGB (satellite ganglion block) to many to count, Rhizotomy, Spinal cord stimulator, Dorsal column stimulator (in RSD leg), 2 5 day epidural blocks/infusions, extreme PT, Botox Injections, Lortab, morphine, vicoprofen, catapress patches and pills, baclofen, ketamine cream, Lidocaine patches,
4.
What are your symptoms?
Extreme Pain and sensitivity, extreme swelling, color changes , nail changes, inversion of the right foot., unable to wiggle my toes since beginning, muscle spasms, deep bone pain, leg gets cold and warm at any whim, mottled skin, decreased bone mass,
5. Have you tried alternative medicine? (acupuncture, holistic, biofeedback, HBOT, etc.)
Bio feedback yes, want to try acupuncture but no one in area does it for RSD pain
6.
What makes it worse/better?
NOTHING!!!!!!!!!!!!!!!!!!!
7.
How does RSD affect your daily and social life?
It has taken my career away, i am a RN and had to quit working, bc treatments kept failing, social life... hard to go out and be able to enjoy life since i am in agony every min of the day with no reprieve of it. I am stuck in my house and have limited friends that understand whats going on with me. Its really hard to find anyone that will understand and it only makes me look more frail and untouchable.
8. Are you experiencing any emotional/psychological effects? If so please explain.
Its been tough since its 6 years of nothing but pain and disappointments and no foreseen able end to this, i have good days and bad. Thank god for a great family and great friends!!
9.
Does RSD affect your ability to work?
yea. I haven't been able to since the day of surgery that triggered my RSD!!
10.
Have you been told by others its all in your head? If so by who?
Oh god yea, prev. doctors and friends and some family members till they seen that it wasn't going away!
11. Have you ever been denied treatment? (by hospitals, clinics, doctors, ER, etc.)
I have been denied stronger pain meds bc i was told that they dont work for RSD pain so why try them and get addicted!!
12.
What tests were run to find diagnosis?
I had a SGB block that they said confirmed it and also a total bone scan showed hotspots of RSD
Name: Amber Jones
Age: 30
Location: Greene, NY
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~Amber~
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