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Old 11-15-2008, 10:09 PM
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
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15 yr Member
darlindeb25 darlindeb25 is offline
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darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
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Ok, time for another post. For me, a good day is waking up without a pounding headache. I have head nasty headaches for years, never going without a headache, day in and day out. I just determined it was from my family history. Some people actually have no idea what a headache feels like, others only have a headache on rare occasions...I have one every day, well, I have a continual headache, all the time. I was diagnosed with sleep apnea, and put on CPAP. I would wake without a headache, and that became my good minutes, the headache came back full force within the hour. I saw my sleep doctor after 2 months on CPAP, with little change, and he put me on Lunesta.

I know, to some, this may seem trivial. Everything is a huge undertaking for me because of my intolerance's. Like the Lunesta, the doctor wanted me on Ambien CR, but it contains gluten. The insurance company wanted me to take a generic Ambien (not CR), yet the drug company could not verify the product as gluten free, so Lunesta became my med. Every time I take a med, I am taking a chance on getting sick from something in the med.

So for me, a good day is one more without being glutened or effected by any of the other intolerance's. Finally, after one week on Lunesta, I am sleeping nearly 6 hours, and I can go 2-3 hours without a headache. Yet, now that I am spending more time in bed, my neuropathy is acting up. The cellphone is ringing in my foot again, and I have a cold spot on my right leg, just below the knee.

One day at a time, that's our best bet. Keep at it, never give up.
Deb
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Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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