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Old 11-16-2008, 09:36 AM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default requip

Mr.Requip here - 24 mg / day for the last two years. Seem to tolerate it unsually well.

First sign of meds in morning is tremor in right arm and strong urge to stretch. Somewhere along the line,I, too, read that as the morning lockup fades the tremor acts up short term.

Unless you have an exceptional Doc, he isn't going to know much more than the drug sales force has told him.


Quote:
Originally Posted by bryn View Post
On another forum someone posted "I talked to the PD nurse who explained that we shake more when starting as the drug [ropinirole] helps with the stiffness and the stiffness masks our shaking. Seems logical!"


This seems logical to me too! Since my ropinirole started to kick in I have got much shakier. Before I relax that I am not actually deteriorating at a rapid rate of knots, is there any other evidence that this PD nurse is correct?

This exchange of information shows the power of a forum but I find it frustrating that, if this is true, my neuro/PD nurse didn't tell me. The leaflet that comes with requip says shaking is a side effect but nothing else. It gets my goat that I upped to 9mg per day because of increased shake thinking it was detrioration not knowing it may be of indicative of the drugs working at the level I was on!

The frustration of it all!!

Bryn
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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