John,
As I was off the boards for a year before it crashed..
Do you know if anyone that posted ever got one..
I did speak personally to Dr.Onders by phone ..years ago when they were enrolling for clinical trials for Spinal Injuries..
As Gary back then was "highly opposed to the vent" ..I figured what the heck..I'll try to call him..to my suprise I didn't get to speak to just his secretary... but to Dr. Onders himself..
At the time though he stated he felt in ALS it would not do any good..as the two pherenic nerves would ultimately become paralyzed by the disease..but I asked if it could theoretically buy PALs more time..as if they were breathing on their own ...didn't the pherenic nerves have to be functioning somewhat for now? ..
He was very polite..but said they were just doing clinical trials on Spinal Injuries...and did not seem too enthusiastic about the idea for the potential usage in ALS at the time..
I'm glad to see though he did try it in ALS..and am looking forward to hearing the results...Lisa