Hi Twigs,
Maybe someone will respond who has a better idea...but have you checked out an MDA clinic to see if they could custom fit something..
Gary used a clinic called the Brace Place..which was part of the MDA clinic for ALS here in town..they custom fit him with leg braces and hand splints..
But due to his trache did not really pursue the neck brace for long...he tried the headmaster as well before the trache ..and it did not work for him either..Lisa