So these "brilliant" docs still have no idea what's going on?
What the hell? How can they "rule out" MG and then send you on your way when you are sick? I just don't get it!
I just don't know what to say.............I can't even imagine how frsutrated you are right now.
Do they have ANY idea what you have? Anything @ all?
Please let me know if there is anything I can do or say to help.........
Erin
Quote:
Originally Posted by rumpled
Sorry for the delayed reply... I have been away visiting relatives (I am tired but it is nice to see my uncle).
I have had 3 other doctors think I have something nm, not sure if it is MG or not. For this doc to say it is all not NM or MG is just plain... strange.
I know all my antibody tests are negative. I do not meet all the criteria for MG...but then again, this disease seems to be different in everyone but I also did not respond to the treatments so far.
I was looking for an intelligent assessment... I did not get that. Thank you for your support - both of you.
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