CONGRATULATIONS, and good luck!!
This "doc" you spoke to, was it someone who often rx's LDN for people who can't find anyone else who will . . . or just your normal doc?
All the best at your appointment, and I hope it is nothing too serious. Remember though, LDN is apparently helpful for LOTS of ailments, so maybe it will help with any others you may have too.
I don't know that I'd want to feel "hyper" (is it like anxiety??), but if it is just giving you mental clarity and energy, combined with physcial stamina . . . I'd say that's fairly common.
Two years earlier (when I didn't have so many problems) I probably wouldn't even have noticed much symptom difference from LDN . . . but when things were WAY bad, then there seemed to be a great change in some aspects. I know you've struggled a lot with the MS PunkD, so perhaps you will notice "significant" changes in some of the symptoms that you've really wrestled with. LDN didn't take away all my symptoms, but the one's that I couldn't live with any more were affected enough that I felt like I wanted to, and could "live" again.
Yes, my sleeping/awake patterns were affected in a big way, and from the get-go. I used to have really bad insomnia, for days on end. I think that was due to the pain which was rectified with LDN, but who knows if that was why I started being able to sleep. However, not being sleep deprived probably contributed to my mental clarity the next day too.
Do you have a fairly regular pattern of relapses? I thought you were PPMS, no?
I was having relapses every 3 months so it was pretty obvious when that stopped. I have had one long'ish attack since being on LDN, but my neuro figures it was because I ignored an infection ... which lead to other infections ... Once I cleared up the "main" infection, everything else fell in place again. (The moral of the story is DON'T IGNORE INFECTION, even while on LDN!
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Hi J. I think that's what puzzles me about the premise on any drug that we might use . . . we might "appear" to be doing better with our MRI's, but it doesn't necessarily mean we are actually 'doing better'. That's why I always say that the important thing is "how we are doing".
I hope LDN works for you too, of course . . . but I'm really glad you are now giving your body a rest from attempting another more heavy-duty drug, especially following Tysabri. Hopefully this is your "ticket" going forward. Good luck!! (BTW, when do you plan to go on a steady dosage of LDN?).
Cherie