It has been awhile since I have posted on here. Since we have last spoken...the air force moved us...much closer to children's hospital now. Dallas has been feeling great! In fact on Monday, we are headed back into surgery to remove his central line. He has had it in for 3 1/2 months and has not needed it in a long time for pheresis. The doctors have taken him off most of his meds and have really decreased his steroids. In fact we are hoping to be off of them completely in the next 1-2 months! He is feeling a little sluggish...but not soooo bad that he needs any help. He is going to be going back to school on December 1st. He and I are extremely excited. The school has been good enough to send a teacher to the house daily for school work. So he is not behind at all.
Hope this finds the rest of our MG friends doing well...Happy Holidays.
Heidi