The Parkinson's Action Network (PAN) in Washington, DC has a piece of legislation they have been working on for about a year. It is called the Udall Act Amendments, and a part of the focus is on a registry.

This is the wording:
Determine how many Americans are battling Parkinson's disease and why. By determining common traits such as age, occupation, and population clusters, NIH can better target critical research funds towards prevention. Parkinson’s

See for details:
http://www.parkinsonsaction.org/content/view/106/203/

This registry is a grave need in order for us to get proper funding. Maybe we can all put our support behind this effort.

Peggy