Quote:
Originally Posted by herekitty
Huh?? I have never heard that before.
I'm sure he's a good neurologist.....but that just sounds like an excuse to keep you on something that makes you miserable.
I'm happy that he didn't think the MRI was anything to worry about. I'm excited for you to start the LDN and report back how you're doing on it!  |
I think he was referring to the MS drugs, because I brought up the less than 40% efficacy rate on the CRAB's. Then he used the example of Tysabri and said...the efficacy rate is higher, but so are the risks...and we see that as other drugs are being developed. He is totally sold on the Biogen products, I could tell that right off.
In my mind, the bright spot was that he had heard of LDN and he didn't bash it. Also his honest answer of "I don't know"
Does that make it more clear? I looked back on my wording and realized it might not be very clear. Sorry about that.
We really were not discussing on a level where he was telling me what to be on, because I already have a neurologist. It was kind of nice to just have a discussion without strings.
He did try to subtly scare me - "Your disease is active right now, the blood brain barrier is being compromised, you need to be on something."
I asked my hubby if the dr. had scared him into putting me back onto my interferons...hubby said no.