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Member
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Join Date: Dec 2006
Location: London, England
Posts: 145
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Member
Join Date: Dec 2006
Location: London, England
Posts: 145
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After 16 years of "idiopathic" PN (now autonomic), every day is a bad day. I just grade them bad, very bad and plain b----y dreadful. My two main regrets regarding my PN generally are 1. Taking omeprazole (Losec originally) for a mechanical defect in my oesophagus which caused reflux of stomach acid. I did not know about B12 depletion and the "way out" levels until I joined Braintalk about 5 years ago. 2. Ever starting on gabapentin (Neurontin) about ten years ago. As I have stated in previous posts, I believe this drug to be one of the biggest disasters for neuropathy sufferers as it requires titrating eventually up to a very high dose (3600mg or even more) which at that point means one has to stay on that dosage for ever or else go through a period of horrendous withdrawal. One is then left with pain medicines only, which usually leads to some form of narcotic.
In the interests of decorum here I will not say what I would consider to be the requirement of a good day.
Tony
PS I would just like to add that I do not doubt for one minute that many members here suffer far more and worse symptoms than I. However we all have our limitations and react accordingly to our individual sufferings. I would just not want anyone to think I was making comparisons or courting sympathy.
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