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Old 11-20-2008, 09:44 PM
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Location: Mistake On The Lake, PA
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PunkDizzle PunkDizzle is offline
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Join Date: Jan 2008
Location: Mistake On The Lake, PA
Posts: 181
15 yr Member
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Quote:
Originally Posted by lady_express_44 View Post

I don't know that I'd want to feel "hyper" (is it like anxiety??), but if it is just giving you mental clarity and energy, combined with physcial stamina . . . I'd say that's fairly common.

Two years earlier (when I didn't have so many problems) I probably wouldn't even have noticed much symptom difference from LDN . . . but when things were WAY bad, then there seemed to be a great change in some aspects. I know you've struggled a lot with the MS PunkD, so perhaps you will notice "significant" changes in some of the symptoms that you've really wrestled with. LDN didn't take away all my symptoms, but the one's that I couldn't live with any more were affected enough that I felt like I wanted to, and could "live" again.

Yes, my sleeping/awake patterns were affected in a big way, and from the get-go. I used to have really bad insomnia, for days on end. I think that was due to the pain which was rectified with LDN, but who knows if that was why I started being able to sleep. However, not being sleep deprived probably contributed to my mental clarity the next day too.

Do you have a fairly regular pattern of relapses? I thought you were PPMS, no?

I was having relapses every 3 months so it was pretty obvious when that stopped. I have had one long'ish attack since being on LDN, but my neuro figures it was because I ignored an infection ... which lead to other infections ... Once I cleared up the "main" infection, everything else fell in place again. (The moral of the story is DON'T IGNORE INFECTION, even while on LDN! )


oh no not hyper as in anxiety.. just very energized.. much like i use to be before the daily fatigue.. i think i chose to use the word "hyper" just because its been so long since i felt somewhat normal and able to function without feeling like i "needed" a nap... it has done very little for my pins & needles Sx but the fatigue was the big killer in my MS.. there again it is way to early in my LDN journey to say if it will or will not help some of my other Sx.. but i can live with some pin pricks if i have to.

my relapses are usually pretty well spaced at 6-8 months apart but neuro says i am RRMS but that could also be because none of the CARBs were working for me... but so far since the LDN makes me feel better i am gonna keep taking it.. sure i may have another relapse in a few months.. i may not... but at least ill feel better no matter what happens as odd as that sounds..
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