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Member
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Join Date: Aug 2006
Location: Los Angeles, CA
Posts: 714
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Member
Join Date: Aug 2006
Location: Los Angeles, CA
Posts: 714
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good suggestions, Lee
I have counseled several hundred DBS'ers. The two things that always seem to be the problem is either 1. (bad)programming and/or 2.suboptimal lead placement.
1-2 millimeters can be the difference between one that works vs one that doesn't!
some thoughts:
1. patience with the programming process. I tell people to give them 12 tries; if they still can't get a good program on board, its time to go elsewhere.
2. even if it involves travel, access the best program you can, DBS is a highly technical surgery,, demanding a surgeon with great skill!
I would not even consider a surgeon who had less than 100 STN targeted procedures to their credit.
3.One should get a copy of their post-op MRI's if they want to get their lead placement verified.
Just one more observation, a half hour is the minimum that a MDS needs to program, and evaluate your PD and set your meds. 15 minutes is just a "patient mill" IMHO.
Charlie
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