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Old 11-21-2008, 09:36 AM
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chasmo chasmo is offline
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Join Date: Aug 2006
Location: Los Angeles, CA
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15 yr Member
chasmo chasmo is offline
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Join Date: Aug 2006
Location: Los Angeles, CA
Posts: 714
15 yr Member
Default good suggestions, Lee

I have counseled several hundred DBS'ers. The two things that always seem to be the problem is either 1. (bad)programming and/or 2.suboptimal lead placement.

1-2 millimeters can be the difference between one that works vs one that doesn't!

some thoughts:
1. patience with the programming process. I tell people to give them 12 tries; if they still can't get a good program on board, its time to go elsewhere.

2. even if it involves travel, access the best program you can, DBS is a highly technical surgery,, demanding a surgeon with great skill!
I would not even consider a surgeon who had less than 100 STN targeted procedures to their credit.

3.One should get a copy of their post-op MRI's if they want to get their lead placement verified.

Just one more observation, a half hour is the minimum that a MDS needs to program, and evaluate your PD and set your meds. 15 minutes is just a "patient mill" IMHO.

Charlie
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"Thanks for this!" says:
LING (11-23-2008), lou_lou (11-22-2008)