Wow. I don't have any idea of your history or anything. I can only imagine the frustration you're going through. I do know the most frustrating thing for me and my wife was the "not knowing what was going on" stage. Google-ing on your own for symptoms, self-diagnosis, is just a recipe for worry and frustration. My symptoms all pointed to a very nasty cancer with a short life expectancy and didn't mention MG at all with online resources. Until I was diagnosed by my thoracic surgeon I had no idea MG even existed.

Have you had full upper body CAT scans with the contrasting dye injected, MRI, PET scans etc? Have you seen an esophageal expert? Has your primary doctor sent your EMG test results for another opinion?

I hope all works out well for you and you find out what is happening to you soon.

Brian