Senior Member
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Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
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Senior Member
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
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I only use my chair when I know I'll need it (one too many times being stranded in the middle of a mall), mostly I use my bilateral AFOs and crutches. I will not go quietly into that good night...
I have very mixed feelings about my chair, even now. I fought it as long as I could and IMHO I think that kept me going mentally. The first time I voluntary said "get the chair" was after I should have been using it for 10 days. Needless to say my dear husband just smiled but (intelligently) did not say I told you so. (those sticks may be light weight but I have good aim!)
I would advise that (with Medicare) you get a manual chair first. Medicare will not pay for a motorized chair and then later authorize a manual. They see wheelchairs as something to help you do daily living skills IN the home only. Stupid rule, but true. Now we know people who use w/c need and want to go outside the house every so often (duh.. to Social Security and MD appts, buy food, visit friends) but they only approve for needs in home. They se no reason to downgrade from something that gets you around (the powerchair) to a manual w/c that gets you around. In other words get a manual when you are ready, then later your doc writes you have worsened and now need the added aid of a powerchair. Most docs know about this rule and happily comply. You will thus have both which can be a big help. Thiose powerchairs are heavy and need planning (and often a lift) to put in a car. I also suggest a ultra-lightweight manual chairs. I like a folding one so I can throw it in the trunk or store in coat closet.
I personally have bit**** enough that my family has learned how to push me correctly most of the time. I prefer to push myself, but my arms are wearing our so it is not always an option for me.
Chirs are/can be really pricey and I highly sugest you get fitted for one by a certified person - not just the any old DME salesman who sells chairs. It makes a world of difference in 1)comfort 2)independence and 3) endurance.
Finally, I was told by my trusted PT this: when you think of IF you might need to get one, it is past the time you should have gotten one. Turns out he was right in my case.
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Jane
Cleverly disguised as a responsible adult!
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