I'm really sorry to read what you're going through and here's a hug too

I too am so frustrated with the Drs and medical side of things and it seems I'm going the same way as you. In brief:

Jun 08 - started getting 'clumsy'... falling over a lot, dropping things, walking into things, missing my mouth when eating/drinking and generally spilling things down myself. Took to wearing flat shoes as I thought maybe it was age catching up with me early (I am 41 years old, which is still young but I thought maybe it is catching up with me earlier than most).

Jul 08 - started getting leg cramps during the night... some lasted 20 minutes or more, sometimes got 2 or 3 per night and they were very intense. My Grandmother used to have leg cramps so I ignored this as well.

Aug 08 - went on holiday to a hot climate... ankles swelled up... feet became very, very painful... it got worse when I came back from the holiday... my feet swelled up so that I had to go up 3 sizes (from a UK 5 to a UK 8) and wear flat Ugg type boots. Got some numbness in my feet as well. Went to the Drs who sent me for a circulation test with a specialist.
Measures taken by myself that helped Bought a circulation booster (TENS machine) that took the edge off the pain.

Sep 08 - started getting pins & needles, shooting pains and a constant ice cold burning sensation in my calves (ranging in severity from a 2 to a 10). Became extremely sensitive to draughts, which made my legs feel like they are being stabbed and torn from the inside. Sensitivity to touch... constantly tender legs. Circulation test with specialist showed circulation was OK. Drs said there was nothing they could do.
Circulation Booster became too painful to use in early September.

Oct 08 - Tenderness spread from calves to thighs... weakness in right leg came on meaning I had to use a walking stick. Pains got more intense. Saw Drs 3/4 times... said I had to wait for an Endocrine appointment (I had a Thyroid Storm 3 years ago and they felt this could be related).
Problems at work as it was difficult to concentrate, especially when the acute attacks became so painful. Started making errors quite frequently.
Measures taken by myself that helped Used a blanket when sitting to keep out draughts. Started wearing 2 pairs of socks, thermal leggings, leg warmers, a pair of trousers and a thick skirt over the top.

Nov 08 - Saw Endocrine Specialist early Nov. Said he thought it could be related to the Thyroid as I was on a block and replace regime for 2 years, or there might even be a slipped disc involved . Action taken by specialist was to stop all thyroid meds (Carbimazole, Thyroxine and a beta-blocker) and then 'see what happens'.
Booked an appointment with my Osteopath (I have a mild curvature of the spine and like to see him regularly to ensure it is kept under control). After seeing the Osteopath it initially went into a kind of remission: the pain became less (although it didn't go completely) and I thought "maybe this is it... maybe the nightmare is over." Last Wednesday 26th it all came back with a vengance... in fact its got much worse.
I am now having to use 2 sticks at times to get around, have difficulty dressing and undressing myself, have difficulty getting in and out of chairs and bed, my voice has become hoarse, my throat swells up and my uvala swells up with no known trigger and randomly so that I find it difficult to breath unless I'm lying down or walk with my head held back. My eyes are constantly burning, sore and swollen and sometimes I have double vision and often I have what I call 'moving' vision... things appear to move even though I know they are not.

I had got to the point where I was basically dispairing: on the whole I feel that when I'm at the Drs/Specialists they feel I'm exaggerating or that I'm taking up their time.

Thanks to a kind person on this forum, I now feel validated enough that I have got my fight back. First thing tomorrow I'm going to insist on going to a Neurologist, something I have asked for 4 or 5 times before and been told "You have a Thyroid condition. It is probably related to the Thyroid. Wait and see and then we'll see if we send you to a Neurologist." I'm not going to take that anymore... what are they waiting for? For me to end up in a wheelchair? To have severe breathing difficulties? To loose my eyesight? I'm not going to take it and I don't think you should either.

Very, very best wishes to you and I do hope that everything resolved.

Also many thanks to those wonderful people who set-up and administer this forum... at the moment it is like a beacon of hope for me and I truly appreciate this fantastic resource and the support you get from it.

Sue