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Old 11-23-2008, 05:25 PM
made it up made it up is offline
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Join Date: Oct 2006
Posts: 376
15 yr Member
made it up made it up is offline
Member
 
Join Date: Oct 2006
Posts: 376
15 yr Member
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[QUOTE=Jim0918;413198]You pose some interesting issues regarding lead placement. Did your dosage increase over time suggesting a possibility that the lead had migrated? Did you go back to the same surgeon/facility that did the placement? I can't imaging w/o some follow up studies that suggest some movement of the leads that the surgeon would be very agreeable to fine tuning their work- they couldn't have it in the wrong place, how dare you suggest! So how do I approach my surgeon with this subject? In my case since I do not have a tremor there was no "noise" in the nerve pathways to guide them to placement. They had to find it by my resulting motor response. They likened it to not having to find the right "house" but the right "neighborhood". Are you kidding me, I want the right room of the right house! Sounds like they may be a block over![/QUOTE

As soon as the bilateral placements were done I had sudden quite obvious gait and balance problems that weren't there before surgery so it really didn't take a lot to work out that something was wrong.
One side of my body also definitely was back to its old slow and rigid self whereas the other side of my body worked beautifully right from the start after surgery, handwriting restored even when doing a sinemet challenge test so I knew and neurosurgeon who luckily was quite a decent chap knew all was not right.
In a nutshell what I was trying to get across to you was that an MRI now would be beneficial to you.
Lee
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