Quote:
Originally Posted by mrsD
I'd get tested for heavy metal toxicity.
Also autoimmune issues.
Anything in the hands?
When I had my severe PN early at 30, I had considerable hand issues as well.
Did you have B12 tested? Do you know the result? Do not accept "normal" from the doctor without the numbers. If they are
below 500, you need B12 ASAP. In fact I would be doing it NOW.
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I appreciate the suggestions, but I'm mostly asking about how quickly others PN had progressed in order to form a comparison with my own.
But, to answer the questions...
There's nothing with the hands (yet). My understanding is that neuropathies are length dependent and that hands don't typically get involved until there's leg issues almost to the top of you thigh (typically where your fingers tips are when you're standing up.)
I've had most tests done over the past number of months including autoimmune, metals, and B12. All the tests, thus far, have been "normal." But I don't have the tests in front of me, so I can't quote the B12 numbers. I'm seeing her again on Tuesday next week and will get a copy of all of my results so that I can look at them in light of what others are saying.
I've went ahead and ordered Methyl B12 based on what others have suggested. It can't hurt.
The rests of Liza Jane re: Lyme's tests -- originally negative and now positive from Igenix -- may be interesting. I was test for Lymes many months ago, but not by Igenix.
Thanks,
Ed