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Old 11-24-2008, 11:11 PM
greenne greenne is offline
Junior Member
 
Join Date: Jun 2008
Posts: 13
15 yr Member
greenne greenne is offline
Junior Member
 
Join Date: Jun 2008
Posts: 13
15 yr Member
Default Hope Norty works for you....stopped working for me after a few weeks...

Quote:
Originally Posted by goodscout View Post
Hi Friends -

I posted here a few months back asking about alternative therapies for my PCS; I had been to two neurologists and was not experiencing any relief. I had also tried chiropractor, cranial sacral therapy, accupuncture and Physical therapy, and was still plagued with constant headaches, nausea and achiness. I was at my wits end.

At that time, several folks wrote back and suggested a very lose dose (10mg) of an Elavil or Nortriptyline, which are antidepressents, but can work with the neurotransmitters in your brain after this type of injury (or something pretty close to that ...).

I scheduled an appointment with a third neurologist, who seemed to be better equipped to handle folks with PCS. He prescribed 10 mg of Nortriptyline and Celebrex. I don't know how or why, but after almost a year of constant headaches, nausea and achiness, I am feeling symptom free, OVERNIGHT. And, I haven't even taken the Celebrex yet (not covered by my insurance and quite expensive out of pocket).

So, my humble advice is to make sure you find a neuro. who really listens and understands that these symptoms are REAL. (The second neurologist's medical records indicated that he thought I was most likely suffering from and should be treated for anxiety. I think I was anxious in his office because I was queasy and didn't want to throw up on his $200 loafers...). I live in the Boston area and thought that after seeing two well respected neurologists who basically shrugged their shoulders that this was all there was. FIND SOMEONE WHO WILL LISTEN TO YOU! I am not say this treatment will work for everyone, but it is certainly worth a shot for a percentage of folks out there. I hope this helps. Those of us that have gone through this are rooting for you.
Hi,

Good luck to you! Nortriptyline was the first med my neurologist tried to get a handle on my post TBI migraines. It worked great at first, cutting my migraines by about 50%..then we tried to up the dose. Long story short.....I got no additional help from the additional dose and some disturbing side effects. I started at 25mg and ramped to 50mg.

Anyways, I'm not trying to rain on your parade. I really hope it works for you better than it did for me....but beware the effects may wear off after a few weeks. Topamax is the only thing that so far has helped my migraine headaches...but no relief from my other PCS-type symptoms.

Nate
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