One year and 10 months in I have had little progression - it all came on in an onslaught, pins, needles, burning, weakness etc in hands and feet and now it is pretty much the same with occasional flare ups of different symptoms and occasional periods where it feels slightly better - but nothing substantially worse. Dr says it will get worse but doesn't know when. IVIG may or may not be helping, hard to tell. It's idiopathic. Basically I think there is really no way to tell. All you can do is the do the best you can to take care of yourself - lower your stress, get rest, try to eat healthy, try different meds/treatments etc - and cross your fingers!


QUOTE=cyclelops;414173]I didn't even know my feet were numb.

Six years later, it is in my arms and autonomic nervous system.

That said, I had Lyme and have Sjogrens, oh and got whacked by a truck head on at 55mph.

It is hard to compare from one person to the next.

IVIG helped my numbness and 'falling asleep sensation' tremendously.[/QUOTE]