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Old 11-26-2008, 09:46 AM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Oh, I think it is possible to have Lyme and Sjogrens. I may have had Sjogren's prior to being 'ticked'. I have a number of conditions that cause PN. IVIG has totally done away with numbness, which was profound. I would be the first one to say Lyme caused this mess. At this point, they won't do anything for me.

I know the exact dates of my Lyme, it is on record...I even recorded my temps etc. I don't think they killed it at the time....however, later, they had to have done away with it. By then, I had symptoms of PN and didn't know it.

1994 was a Lyme epidemic. That was when I got it. I lived in an area dripping with ticks. I would pull 20-30 wood ticks off my dogs. Never saw a deer tick there tho. Once we went for a picnic and saw smaller ticks....duh we thought they were 'baby ticks'. I probably got mine sitting on the couch, probably a tick brought in by a dog. Never saw it. Deer ticks are the size of a pin head.

If you have had Lyme for 15 years, it will be interesting to see what comes back on PCR testing. Also are they going to treat you with IV? Is your IgG positive? They give more credence to the IgG.

I assume assays done at other places were negative (as were mine).

I agree that there is no idiopathic PN. I don't know where you live...I hope it is out east. That is where you can get treatment.
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