Nide44, funny name for your pain.
Rina, I am glad i was able to explain what you wanted to. Where are you from by the way?


Cyclelops, now i understand what your pain is like. I dind't get what you meant by bone pain either.


I guess the only thing we can do is to keep ourselves as healthy as we can by having good eating habits, doing exercise, taking our meds and supplements.

Just one question here: I wonder if it would be ok to have some sort of immunosuppresive therapy (because doctors concluded my neuropathy had an autoimmune component). I won't ever take coirticoids again, never ever, cut i was wondering if I should get an other IVIG session?? ( i mean, just in case). I was on Immuran but quit it because of its potential terrible side effects. Or should i just let my body do whatever it is going to do without me interfering?