Hi Monica

I am on IVIG, which stops the numbness. I am exquisitely sensitive to drugs which is a huge problem. I am going off opiates and ambien right now, as the doc thinks now, that those are messing up my autonomic system. UGH, it has been 2 weeks, and my head still feels full of cotton.

Ambien stinks to get off of...just a warning to every one....far worse than pain killer withdrawal. Neurontin is taking off the edge now but I just started that.

I do have something going on that is autoimmune. I am diagnosed with Sjogrens, and I am a post Lymie. My autonomic neuropathy is autoimmune.

Have to hope I can keep my IVIG.

I was on steroids IV for 16 weeks.....I, too, will not take steroids again.