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Old 11-26-2008, 02:05 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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No one can really give you an answer on how fast neuropathy can progress. First there is the issue of what is causing it. If you can treat the cause you may be able to arrest the neuropathy.

I didn't realize I had neuropathy until I was presyncopal due to hypotension and bradycardia, and it was already thru my autonomic system. After skin biopsies, they found I had sensory neuropathy as well. I have it in my legs to above the knee, and in my hands. A muscle biopsy of the bicep shows neurogenic myopathy which means it is up there too. I was not diagnosed until it was advanced because I didnt have burning feet.

Their thought is autoimmune, and I get IVIG, which stops the numbness and falling asleep feeling. I have had Lyme in the past. Post lyme issues are treated for the most part, like fibromyalgia or autoimmune disease. Lyme is known to cause PN and dysautonmia. I would not wish dysautonmia on my worst enemy. I also carry a seronegative Sjogren's diagnosis. Doc at Hopkins told me half of Sjogren's pts. are seronegative.

PN is rather unpredictable. Take the best care of yourself that you can and search for a cause.

Good luck to you.
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