Cere 120 failed to meet endpoints. I didn't see that one coming altho it is not much of a surprise - researchers are saying publicly that it wasn't as good. I wonder if they truly believed it could be as good as GDNF. I was under the impression from the first mention of neurturin that it didn't work as well as GDNF. On the other hand, they had no choice, thanks to Amgen and made a historical attempt to be quick about it.
Neil asked, "what's next if the other gene therapies don't work?"
Well there's this and that:
http://michaeljfox.org/newsEvents_pa...cle.cfm?ID=419
http://michaeljfox.org/newsEvents_pa...cle.cfm?ID=418
Always hope for symptom improvement. But even Mike says not working to cure himself and the foundation makes no decision based on his circumstance. Look for People mag. next week.
I would like to feel better, have had no delusions about a cure since GDNF .
So now we are helping our children and grandchildren. I would still like to keep kickin as a "patient researcher" - it gives me something to neglect doing. Like there is a purpose behind my utterly pathetic energy bank that will someday emerge as a great discovery.
.....i'm in a changing environment that is a bit like a carnival mixed with solid spirituality. It's getting better, and I am ready to roll up one sleeve at this now. Can we meet next Tuesday at 4:00 PM ET? I'll do my best to remember and will start the chat room shortly before 4.
We heed expert advice on what kind of data is
needed.
We need pre-existing resources.
I'm working on some collaborative ideas to help get us the boost we need to start.
so next Tuesday at 4:00 pm. ET in the pd chat room.. I'll create one shortly before 4 and try to remember this time. Open to all who are interested.
Thank you and Have a Happy Thanksgiving!
paula
adding: even my personality is med regulated. As I 'm writing this, I'm quite positive we can add to the valid mining of patient research. In the morning, citing my almost total incapacitation as demonstrated by the bizarre gyrations and effort necessary to make it to the bathroom, I berate myself for committing to another project when i have no energy for my own life. It takes a half day sometimes to wake up....then i'm out of depression and ready to write a database.