Hello to everyone!

I need some advice. I have been experiencing severe headaches for a couple of years. So far, every doctor I have seen has said it's migraines. I have been on a variety of medications that have not worked. At the moment I'm on Gabapentin and it's not really working. The headaches are very specific. They are worse in the morning, seem to get better during the day and come back during the night while I (try) to sleep. The pain is localized to only the back of my head and neck. It feels like there is something sticking into the back of my scull - with a lot of pressure. Lately, my right hand and my upper eyelids have been swelling over night.

I've been told my MRI looks fine except for "low lying cerebella tonsils that are not frankly entopic."

Any ideas?