Well it's official - I have been dx with Charcot-Marie-Tooth disease. The Neurologist is not sure if it is Type 1 or Type X.

I asked him to explain to me if all my sx fall under this dx. He said no. Basically only about 50% or so of my sx can be classified as CMT. I asked him if he could explain the balance of my sx. He said no.


I asked him if we where going to look into the cause of the balance of my sx. He said he would forward a letter back to my GP. There was no other testing ordered and no follow up appointment.

He told me that my Nerve Conduction Study today showed a severe disability but my neuro exam does not. Hummmmm-what the heck is that suppose to mean.

He also asked me if my Father (he has been dx with CMT type 2) is sure that he does in fact have CMT. Ummmmm, What the heck does that mean.

ANYONE ELSE ON HERE WITH CMT?

Hoping all my US friends are having a wonderful Thanksgiving.

(hugs)

Lynxgal