hello i will introduce myself to all those her that dont know me.


in feb 06 i woke up one ay with fire from the waist down , within the next five days i had lost the ability to pee , deficate, i had the is enourmous back pain that was unbearable, then i couldnt walk.

flash back a few years to mid 96 i started to get very fatigued at work, and noticced pins and neeedles in my thighs but thought this was work related because my job was a very physical one. but recognised the symptoms as my youger brother had alread been dxd with ms and had simaler affects.


i spent the better part of a month in the hospitla with every specialist in the area looking at me and figuring things out. but i had made it a point to get an lp and do mris at the time of the flare or whatever it is.

the lps came up positive for ms with over five bands on thier scale. six months later i had anothe rlp it was positive with two bands.

so far all my mris have been cler. but was dxd with ms by a nurologist and did the avonex for a year.

then out of the blue the same nurologist said never mind your mris are clear thereore you dont have ms but instead you have transversemyelitis. his superiors came to the same conclusion and the so called ms specialist in sf tlaked with me for five minutes did a review of my reords and said no ms. what an ****.

here it is almost three years later. thighs still getting electric shocks, legs and feet go hot and cold, i have continual back pain. get foggy, slur my speaech when rushing it, im very fatigued all the time and take power naps which actually keep me up a good portion of the day. with insomnia. wwhen i do sleep heavy i wake up in pian and never sleep over three hours without the use of ambien.

my medications include,

morphine- 15 mg 3x daily
percocet- 325 mg as needed for breakthrough pain.
gaperpentin 3x300 3 x daily used to be 4x300 3 times daily
vitamin b-12 100mg daily
lisonopril- 20 mg once daily
simvastatin- 40 mg onece daily
hydroclorothiazied 25 mg once daily
prozac once daily
and a stool softener because of pain meds.


before i got sick in 2006 i wouldnt even take an asprin for a headace id usually just tough through it.


i believe my symptoms were cause d by traumatic shock from a nose breaking three weeks erlier and then a bad cough that lasted a week aster that. the night before my symptoms started i had a cough attack that lasted almost an hour that was so heavey i thought i thre out my back.



i am 45 years old a retired chef, a geeek since 1977 and enjoy my time with my computers and cars. i mamarried for 12 years now and have been unemployed since i got sick. it took me almost two yers to get back to 75 percent stregnth in my body. i have a service dog jake which is a queensland heeler who almost never leaves my side.


i serverd in the airforce from 82-86 and was raised in the navy.


thanks for reading.


roger.