Hi Mark,
You are truly a hero in my eyes. To tolerate all you have been through and still seem to have a positive attitude is so inspiring to me. I have had rsd for almost 6 years. I guess I have been lucky it has been under control to a point. I have done the ketamine route and it definitely stops or settles down the pain and other symptoms. I can relate to people becoming your friends for the medication you get. When I first got hurt I had women who really where just hi and by friends ask me to sell my medication to them, I was also robbed by a maid service the police had to get involved because my doctor had to write all my rx's over. So now I do the same as you. If anyone ask I tell them I don't take anything anymore. It is unbelievable the effort people will go to get pills. And the people who approached me are the type you would never expect, very wealthy, big homes, anyone else would think there life is perfect. What a joke. I have learned so much about people since I was told I have RSD. I also have been lucky with my doctor who I have been with since the beginning. He not only helped with the RSD but directed me to the proper doctors to fix the effected limb which is almost 100% in function but still have so much pain and the RSD went to my spine which is new in the last year or so and that is really killing me at the moment.
Well what else can I say. You deserve a metal. Keep healthy.
Again, you truly inspired me. When I think 1968 I was only 7 years old.
Gabbycakes
Quote:
Originally Posted by rsdno
Hi Thanks for the nice words Mike . I hope I am always making it clear that my having RSD Dx ed since 1968 doesn ot make my pain worse (In fact the pain Doctor here told me all my nerves burnt out anyway [what an idiot],when I refused the Morphine Pump and thats all he does and his partner does oh also SGB and Epidural etc blocks )and I have had so many ,I was told it would be unwise to get more blocks .Different things work for people whos RSD was gotten and treated differently I would still like Doctors to treat us as one Intractable Pain patient at a time ,the RSD is more about my pain to Doctors and my RSD makes me part of a cohesive community of other RSDers and I am proud to belong to it especially here when i think of all the really strong caring people in pain I have gotten to know
Most important to me is to always let people know that I can't feel my RSD Pain from 1968 ,I only feel it right now ,which to me means all of us RSDers are at the same temporal place as far as pain
Now I was born XX XY and I still feel pain from that ,and I sometimes wonder if maybe I was more apt to get RSD because of that ,since it seems so many more women than men have RSD ,I even feel kinda bad when there are women's only RSD Groups (like For Grace) and it makes it look like RSD isnt as important in men ,but I guess I can join either type of group ,it's Thanksgiving it's a long day ,I hope everyone has a Wonderful Thanksgiving ,my lady wants us to go shopping I think at like 4AM why do people do this (I'll follow Melissa anywhere),it is much more fun to get to give a lot of presents to people though I haven't been able to for a long time ,I live at Sheltercare and they give us so many presents ,it is very humbling ,its also humbling to hear such nice words from people with RSD who are hurting but getting through just as well as possible
Gentlest Hug Mark
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