Thanks for the info - GLenn - is there any different kind of treatment for type of PN? Since I dont respond to auto-immune treatments the docs say its genetic - which would make it cerebellum and just live with it like forevever (actuLLY, the ataxia for me anyway is much easier to deal with then the autonomic symtoms - using assistance devices are not that bad)? I've done all the exercises for my ankles, legs, etc... but never make any difference - and my neuro has said theres absolutely no way to restore the nerve roots - so I guess thats the future.... thats all we need now - sub classes of sub classes of PN..... they offer me little hope actually - and right now I'm fighitng C-Diff for two months now on top of everthing which wont go away - and is making me weaker all the time (and continue to loose weight) - autonomic pluls C-Diff do not a happy camper make.... I hope those of us that can get maybe experimental care do - and maybe can help the rest us.....