I've had a few friends with TOS, but I've never really understood the condition myself. I hope that yours is not too bad. I am glad that you decided to check out our forum. It's a very friendly place, and there's a seperate forum for TOS. I'm sure the members there can help you out a lot.
Anyway, good luck and best of wishes, O2bponca! I will constantly wish that your problem finds a cure!