Quote:
Originally Posted by treeves
I'm glad that your daughter has had a good outcome. I am reading reading reading. I'm just baffled because my Orthopaedic surgeon said that he saw nothing on my MRI report that would be the possible cause of my headaches. Then I read that. Maybe it's simply because Chiari is not in his realm and he really doesn't understand it. Here's is one thing that is most concerning to me. I also post on another board and there I read that someone had Chiari and they corrected it first before they did the ACDF surgery to prevent complications. Now I've done this in reverse and wonder if my symptoms now aren't because of this. Thank you so much for the reassurance. I really needed to hear that Chiari surgery can have a good outcome if I have to go that far. I've asked and asked and can't seem to get very many questions answered. So I cannot thank you enough.
|
I, also, want to reassure you that there is hope. I learned , after having two rear end collisions two years in a row, that I had Chiari ( 8 mm tonsillar herniation) and a c1-t2 syrinx. I was shocked at the time but in thinking back I had a lot of symptoms that were unexplained before the accidents that the doctors were never able to figure out. Headaches, fatigue, muscle pain.. At least there was FINALLY a reason..
I had surgery almost immediately because I the doctor I saw was our _ family neurosurgeon" .. I trusted him because I was scared and he assured me that he " did the most of these in all of Wisconsin" . I learned that while he was a great brain surgeon, he was NOT a chiari/ syringomyelia expert ( I didn't know that there WERE such people t the time) . My lesson after a failed chiari surgery ( although the syrinx is better after putting in a shunt ) , is that doctors like the ones at the Chairi Institute KNOW Chiari.. It IS there passion. I learned this later and better later than never.. BE INFORMED.. BE EDUCATED.. GET ANOTHER OPINION.. It is YOUR BODY AND YOUR LIFE.. If you contact ASAP. they can help. Every year there is a conference.. In July, It'll be in Madison, WI .. The doctors who soeak KNOW chiari.. It's what they do and what they are trying to explain and hopefully one day fix or even prevent. You'll never regret it.
Take care! Lauri