Jenny -

While I'm hopeful there are more to be found, your post is the first relatively optimistic one I've read. Thank you so much!

I'm really glad that you are improving and hope my outcome will be just as encouraging.

If all goes well with my surgery (or alternative), I'll be visiting London for 8 days in April for a family retreat. Also, in January, my mother-in-law will be going to Leeds for about a year and a half. Do you live anywhere near either?

Hoping to find some type of support group here close to home. Of course, I don't know anybody in my circle of family or friends who has ever heard of TOS - and most doctors haven't either!

My angiogram procedure was actually a little unique, they say, because all of the nurses and techs had to have the vascular surgeon explain my condition before starting the test because none of them knew what it was or what they were looking for. When they put my arm over my head and re-injected the dye, I could hear a sleuth of "Oh, my gosh," "Look at that," "I've never seen anything like that," remarks. Because I was "twilight" sedated, nobody really talked to me about it after that.

My angio was on Nov. 19th and I've had to wait thru the holiday for my follow-up, so naturally I've been a little anxious. Hoping to get some answers tomorrow, although Dr. already told me he will refer me out to another surgeon - so I'm not expecting much.

We shall see!

I hope you continue to improve and feel better every day. Thanks again!

Carrie