I'm so sorry that I don't have any answers for you, but your post has really touched my heart.
I can't even begin to understand what you've been through with your son, but I wanted to reach out and tell you that you're no longer alone.
Welcome to NeuroTalk Miss Positive. If your screen name is indicative of your will-power, then you will get through this stressful time with your son.
I do hope that some-one with some answers will come along soon and help you out.
__________________
Eastern Australian Daylight Savings Time
and
my temperature
.